Rare Diseases

How A Rare Condition Can Fuel Medicaid Spending, Utilization

November 16, 2021 - Medicaid spending on sickle cell disease treatment and patient outcomes among beneficiaries with sickle cell disease reveal gaps in health equity and opportunities for improving care for super-utilizers of healthcare, according to a Manatt Health report. Sickle cell disease primarily impacts patients who can trace their ancestry back to sub-Saharan...


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Aetna Will Offer Some Gene Therapies As Standard Medical Benefit

by Kelsey Waddill

Aetna members will have better access to gene therapies in 2022, the payer announced. “Gene therapy is poised for significant growth in the coming years, and the promise of durable improvement...

Rare Disease Healthcare Spending Tops Costly Chronic Diseases

by Kelsey Waddill

While payers have been focusing justifiably on diminishing healthcare spending for chronic conditions, rare disease healthcare spending may exceed chronic disease healthcare spending, according to the...